Gluten Free Winston-Salem: NCPTGIG meeting scheduled for April 16 has been postponed

Thursday, April 7, 2011

NCPTGIG meeting scheduled for April 16 has been postponed

Update from Grace Johnston on the rescheduling of the next NCPTGIG meeting:

Dr. Ivor Hill has a conflict with April 16. Our advisory committee voted last night to reschedule. Dr. Hill will bring Dr. Marcie K. Drury Brown, a pediatric endocrinologist who has celiac disease, to our next meeting. We are amending the topic to include recommended follow-up care for celiac disease and wheat sensitivity and other autoimmune issues, symptoms, to be aware of. Once their July schedules are posted we will set a date. This will be worth waiting for.
Continue to compile your tips for navigating the gluten-free diet, how you deal with the social and psychological issues following the diet. Within our group is a wealth of information, the correct information, and yes, the material for the next addendum. Please continue to share your talent.

Look forward also to great gluten-free potlucks!
Also, (1) cooking demonstrations with our kids
         (2) fun family exercises and games
         (3)samples from gluten-free vendors
         (4) 28 day gluten-free menu for our kids
         (5) a gluten-free dining event at New Town Bistro
          (6) program meeting with Dr. Jillian Teta

I am particularly concerned that we continue to be available to those newly diagnosed. I thank you for the outreach effort you are making and I encourage everyone to continue to communicate by asking questions and sharing information.

No comments:

Subscribe to: Post Comments (Atom)

Celiac Disease by the Numbers

1 out of every 133 Americans (about 3 million people) has CD.
97% of Americans estimated to have CD are not diagnosed.
CD has over 300 known symptoms although some people experience none.
Age of diagnosis is key: If you are diagnosed between age 2-4, your chance of getting an additional autoimmune disorder is 10.5%. Over the age of 20, that rockets up to 34%.
30% of the US population is estimated to have the genes necessary for CD.
2.5 babies are born every minute in the USA with the genetic makeup to have CD.
There are 15 states in the US with populations less than the total number of Celiacs in the US.
CD affects more people in the US than Crohn’s Disease, Cystic Fibrosis, Multiple Sclerosis and Parkinson’s disease combined.
500,000 new Celiac diagnoses are expected to occur in the US by 2012 -- thanks to efforts to raise public awareness of the disease.
People with CD dine out 80% less than they used to before diagnosis and believe less than 10% of eating establishments have a 'very good' or 'good' understanding of GF diets.
It takes an average of 11 years for patients to be properly diagnosed with CD even though a simple blood test exists.
The average cost of misdiagnosis is $5,000 - $12,000 per person per year. Improving the time to diagnosis could save the health care system millions of dollars annually in unnecessary medical care.
A recent study by Packaged Facts projects that the sales of GF food will reach $2.63 Billion by 2012.
GF foods are, on average, 242% more expensive then their non-GF counterparts.
The smallest amount of gluten which has been shown by a biopsy to cause damage to a Celiac is 0.1 gram per day - or 1/48th of a slice of bread.
The Food Allergen Labeling & Consumer Protection Act became law in 2006 allowing for easier reading of food labels for those with CD. What took so long?
12% of people in the US who have Down Syndrome also have CD.
6% of people in the US who have Type 1 Diabetes also have CD.
Among people who have a first-degree relative diagnosed with celiac, as many as 1 in 22 people may have the disease.
There are currently 0 drugs available to treat CD.